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#264077 - 09/09/05 06:08 PM
Re: Little update
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Power Poster
Joined: Jan 2004
Posts: 3,626
State of confusion
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What a wonderful spirit you all have! CONGRATULATIONS on your vacation Becca!!
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Going to church doesn't make you a christian any more that standing in your garage makes you a car.
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#264078 - 09/09/05 07:49 PM
Re: Little update
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Power Poster
Joined: Nov 2003
Posts: 3,020
Land of Enchantment
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Great news! I pray for Natalie's continued improvement.
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You need an attitude adjustment ---- let me get my tools!
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#264080 - 09/09/05 09:18 PM
Re: Little update
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Power Poster
Joined: Dec 2000
Posts: 5,184
All over the map.
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On the road again.....I just can't wait to get on the road again.
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#264081 - 09/09/05 10:23 PM
Re: Little update
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Power Poster
Joined: Sep 2004
Posts: 4,241
middle of the country
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What a wonderful way to start my weekend, with such good news from you. Yes, we want to hear updates on your princess, don't you dare stop. Enjoy your weekend and your 2 months off from Doctors and Hospitals!!!!! ![](/ubbthreads/images/graemlins/smile.gif)
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Treading water in a hurricane
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#264083 - 09/14/05 06:01 PM
Re: Little update
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Diamond Poster
Joined: Oct 2001
Posts: 1,570
Wisteria Lane..
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I love hearing good news!
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And where is Superman when I need him?
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#264084 - 09/16/05 07:13 PM
Another Little update
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Power Poster
Joined: May 2002
Posts: 6,260
NW IL
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I posted an update on her webpage...he, he, he ![](/ubbthreads/images/graemlins/grin.gif) ...I'm going to make you go there to read it (click on my profile, it's there). Feeling a bit devilish today ![](/ubbthreads/images/graemlins/smile.gif) .
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#264086 - 09/16/05 07:26 PM
Re: Another Little update
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10K Club
Joined: Sep 2002
Posts: 13,965
TN
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I don't blame you for being nervous, but I have one small piece of advice. This is something they taught my mother after her heart surgery (she is an incredible worrier and couldn't sleep). Try to take each day at a time and not look at what happened yesterday. That's in the past and just look at all of the good things in the future.
BTW - congratulations on all of the great news. I think of you and your strength often.
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My Opinions Only
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#264087 - 09/16/05 08:30 PM
Re: Another Little update
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Diamond Poster
Joined: Jun 2002
Posts: 1,815
Minnesota
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Wonderful news! ![](/ubbthreads/images/graemlins/smile.gif) We are praying for Annika also. I read her link a few weeks ago, and honestly couldn't finish the post today. She sounds like an amazing little girl.
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Do what you can, with what you have, where you are. ~Theodore Roosevelt~
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#264088 - 09/16/05 08:44 PM
Re: Another Little update
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Power Poster
Joined: May 2003
Posts: 3,760
Running and riding everywhere ...
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I read her's also...I saw the picture of the girls playing together. They are just precious!
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I don't need any more negativity in my life...be positive and helpful people or I will kick you in the shins!!!
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#264089 - 09/16/05 09:47 PM
Re: Another Little update
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Power Poster
Joined: May 2002
Posts: 6,260
NW IL
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Quote:
She sounds like an amazing little girl.
We've only met in person a few times, but you would not believe how right you are.
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#264090 - 09/22/05 08:53 PM
Update...sorry if it's long...
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Power Poster
Joined: May 2002
Posts: 6,260
NW IL
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I'm just going to copy and paste from her website:
Home at last.
We got on the road for Chicago at 4:30 this morning! Natalie was scheduled for the first case (7:30am) this morning in IR - to squirt her PTC tube with dye, check for blockages and proper placement, and replace the tube if necessary. But because she got her PICC line out recently, we had to start an IV so we could give her sedation.
Poor daddy, he got the task of holding Natalie down - we take turns doing this, unfortunately. She was understandably upset, screaming until her face and neck was bright red. While we gave the IV, labs were also drawn so Natalie wouldn't have to get stuck with a needle twice in one day. Then we started the sedation. Suddenly she looked up at me and smiled. Then Jason said, "Well, it looks like the versed is working." So, Becky our favorite IR nurse whisked Natalie away and less than half an hour later, they were done. The tube was completely blocked so they exchanged it with a new tube.
Then we waited in the IR recovery area with Natalie for the side affects of the sedation (versed) to wear off. She is so darned cute on versed. She tries to sit up and then flops her head around talking in a sort of sing-song way. After another half hour Natalie was good-to-go and we made our way from the 2nd floor to the 3rd for our transplant clinic appointment. Natalie's doctors came in and said her labs are "FANTASTIC!" We are going to adjust her Actigall a bit (it thins bile) to help keep the PTC tube clearer. And we don't have to go back to clinic for 3 weeks!!!! WOOHOO!!!
So we left the hospital and took a stroll to the Lincoln Park Zoo. The clouds were threatening us with off and on rain, so it was a quick trip, but worth it as Natalie checked out her favorite - the BEARS!!! We walked up to the Polar Bear underwater viewing area and Natalie gasped, "Wow." (That Wow needs to be read in a sort of awestruck whisper for full effect.)
While we were in the Zoo, Jason got a call. He will be going to Louisiana with 5 other members of his SWAT team. They will be leaving September 29, the day before Natalie's birthday and he will miss her party. But I couldn't be more proud of him. He has been called to help those less fortunate than us. Natalie has a house and food and the best medical care in the world, but some little kids in Mississippi and Louisiana lost all of that.
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#264091 - 09/22/05 11:05 PM
Re: Update...sorry if it's long...
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Power Poster
Joined: Mar 2004
Posts: 6,172
Further South than I wanna be.
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Becca, Glad you had such a good report and a day at the zoo. Tell Jason we will be thinking of him and looking over you while he is gone.
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Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference.
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#264094 - 09/23/05 12:58 PM
Re: Update...sorry if it's long...
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Power Poster
Joined: Jan 2004
Posts: 3,626
State of confusion
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Never be sorry for a long update!! We love to hear about your little bear. It makes us all grateful that we get to hear the stories because it lets us know the strength faith can give. People can endure anything with love and faith. My thoughts and prayers are with you, Natalie and Jason in every endevor.
_________________________
Going to church doesn't make you a christian any more that standing in your garage makes you a car.
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#264095 - 09/23/05 01:11 PM
Re: Update...sorry if it's long...
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Power Poster
Joined: Jun 2001
Posts: 6,153
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'For I know the plans I have for you,' declares the Lord, 'plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call upon me and come and pray to me, and I will listen to you. You will seek me...and I will be found by you,' declares the Lord."
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Better a patient man than a warrior, a man who controls his temper than one who takes a city
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#264097 - 09/23/05 03:03 PM
Re: Update...sorry if it's long...
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Power Poster
Joined: Sep 2004
Posts: 4,241
middle of the country
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Once again, a good way to start the weekend with good news on "our little girl" ![](/ubbthreads/images/graemlins/grin.gif)
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Treading water in a hurricane
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#264099 - 09/23/05 03:57 PM
Re: Update...sorry if it's long...
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Power Poster
Joined: Aug 2002
Posts: 3,275
Quadrupletville, Texas
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I'll have to agree with Natalie with my opinion of your update, WOW!
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"I don''t make jokes. I just watch the government and report the facts." - - Will Rogers (still relevant today)
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#264101 - 10/10/05 03:27 AM
Re: Update...sorry if it's short!
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Power Poster
Joined: Apr 2001
Posts: 4,828
Between the lines
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It has been a long road for all of you, so glad that things are going well now. Hard to believe that one day she will remember very little of this. I am still praying that things just keep getting better.
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NOLA is my Beach!
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