That is wonderful news!!

I am not exactly skinny, so I will chime in with my song!! Happy Happy Joy Joy! What a wonderful Easter you will have. Congratulations to you and your little fighter!!

I'm 30 pounds lighter than I used to be but I can still sing - let's harmonize!!! All together now....

Hey all. I'm just checking in...finally!!! Thanks for your continued support and prayers. The true test will be on Thursday (we have clinic) - we ARE NOT packing an overnight bag this time!

I can't think of a better Easter gift! We're relieved to hear that things are going well. We'll be anxious to hear how her appointment goes on Thursday.

So, how is it going????

I'm assuming no news is good news!

Bump - I really hope they're so busy getting ready for the Easter Bunny that they haven't had time to update.

We'll hope for the best. Keep the dear in your prayers either way. I think she will need us for a while

Here was last night's post. We are home so already that's an improvement.

Thursday, March 24, 2005 9:12 PM CST

Nothing is ever easy, not that I am complaining too much, since we are home and not in the hospital tonight. Throughout the past year I have learned patience, without realizing it. This week, never once did I lose my cool.

Here are this week's past events...
Monday - Home health nurse comes late (Prograf is due at 9am) it cannot be given until the nurse draws the blood for labs. The nurse came at 9:15. Prograf is given at 9:30 am.

Tuesday - We notice that the site of the biliary drain tube is leaking. We call Children's (our angel) Dave advises us to attach the bag. He then sets up a procedure for 1st case Wednesday morning. During this procedure they are going to look at the tube placement and if it needs to be changed they will fix it.

Wednesday - It is snowing and we are not going to make it for our 6:30 am arrival time at CMH. Traffic was TERRIBLE. We arrive at 7:35, and still we wait (even though we are the 1st case of the day of IR) (Interventional Radiology). We are told that they are only going to inject die to look at the tube placement. They did not plan on re-positioning the catheter (this is contrary to our plans that were set up). Had we known this we would not have come in...since we have a clinic appointment scheduled for Thursday.
We drive home. Dave, (see above) calls apologizing for IR's mistakes. He sets up another procedure for us with them for Thursday following our clinic appointment.

Thursday (today) - We make the trip in again! The home health nurse comes at 8. Prograf is given on time. We arrive for our clinic appointment and get right in. (What's going on here? Things are working in our favor?) Crap, spoke too soon, IR is running behind, we need to wait an hour and a half for them to get to Natalie. The catheter was replaced and repositioned. We are told that they have reserved a room for us. We told them what we thought - and we are home now! And Natalie is doing GREAT!!!!

Thanks for the update. You all continue to be in my prayers!

I am glad you have patience and are at home. Hang in there...it sounds like progress in continuing......also, maybe one of these days you'll have our Texas 70 degree springtime weather instead of snow!

My dad (a minister) use to tell me that God never gave me more than I could handle and there have been many, many, many times in my life I think God just lost count!!! Then a good friend said that she believes that God gives us more than we can handle ALONE, so we will turn to him - he is always, always there. That I have seen in my life and it seems you are too. We are all here, praying and sending good thoughts to you three. And, she is home and improving, what a blessing. Happy Easter!!

Becca we're praying for you as much as the little bear Someday this will all be over and you'll have nothing to worry about besides her coming home an hour late from a date Keep that in mind!!!

Such a tough little girl and even tougher mom! I've never posted on this link, but I ahve been following it and her website from the beginning. So gld to continue hearing good news. Time spent in frustrated waiting now (for appts, procedures, etc) will be well rewarded with a LOT of time with Natalie as she grows up.

I know you said you developed patience throughout this but I just can't imagine what that baby is going through. To have to have all these procedures and sit around and wait. Either she is an absolute angel or you have even more patience than we can even imagine.

God blessed us with an AMAZING kid. She was NPO (no food) for most of the day yesterday. Yet, with a little help from ELMO she was in a GREAT mood all day long. Plus, she picks up on my moods, if I am playful, she is playful. If I am cranky, she gets more cranky. I just have to keep it together for her.

That was me. My bad.

Becca and Natalie, I hope you have a very happy Easter, you have truly been blessed. Thanks for letting us be a part of it.

Motion passed. (well, we have an accord anyway. ) I also hope the Easter Bunny hides eggs full of health, happiness, fun, peace...and so many more blessings. Peace be with you all.

This is yesterday's post from her website - let's hope the drain isn't leaking anymore and that she won't have to have any invasive procedures to fix it!

~~~~~~~~~~~~~

Again, the site of the biliary drain tube started leaking. We noticed this on Saturday. We have a procedure set up for tomorrow. However, there has been no further leaking since yesterday morning. I'm not sure what that means.

Here's our weekly plan:

Wednesday - Cholangiogram at CMH to look at cause of leaking bile
Thursday - Return to CMH for clinic appointment
Friday - ? Sorry that's too far ahead to think

In other Natalie news, she's doing GREAT and we really enjoyed our Easter weekend at home.

~~~~~~~~~~~

Sending lots of hugs & well wishes to the Bear Family from BOLland