For those of you that have never read this very long thread, my daughter got part of my liver in February of this year. I frequently post updates here.
Parts of this update are also on her webpage (click my profile):
I just wanted to let you know that for the month of December, the bear (and her story) is being featured on
Make a Child Smile .
I am humbled to say the least. Kids with life threatening illnesses are featured monthly and volunteers from all over the world send cards and letters to each child. Sometimes I forget just how sick she really is. I try to pretend that everything is normal. But to be featured on this site means that things are very far from normal.
Please check out the site and the story that we have submitted there. Also if you have time, please send a card this holiday season to one of the other kids that are featured there and make them smile.
Liver labs are in...and they are good.
Numbers are trending downward and that's a good thing.
They don't want to see us again until mid December (that's a new record - 5 weeks away from the hospital - knock on wood)!!!
A cute Christmas Story from us :
The bear is obsessed with the big guy in Red.
My daughter LOVES Santa. We went to our local pharmacy last weekend and he was there. She saw him and looked at me - her eyes were gleaming as she whispered, with awe, "Santa." He came over to her and she gave him, "Five." She turned her shy charm on and said, "Hi, Santa." As he walked away she said, "Santa, oh, no." I told her that it was OK; Santa had to visit with other kids too. And she said, "Bye Santa," and blew him a kiss. Oh, my heart just melted.
You see her relationship with Santa first started last Christmas. He came to our annual family Christmas party as he does every year. As he picked my daughter up, my grandma whispered in Santa's ear, "Santa, this is the little girl that needs a transplant." The bear (at 14 months old) was curious. She poked his nose and tugged on his very real beard. She made a new friend. At this age she was just beginning to experience a fear of strangers - but not with Santa.
Santa hugged her tight and asked, "Well, little one what do you want for Christmas?" One of my little cousins said, "She needs a liver!" Santa's eyes welled up with tears. He gave her a big hug and said, "I will pray for you, the Big Guy [Jesus] and I are close." Well, we all lost it then. I cried. But when don't I?
Christmas wishes can come true.